FAQ list for newly diagnosed Celiacs

Dear Kristin and other interested celiacs

 

This list is a good start, but I would put them in a different order, and include GIG as a resource, along with CSA.

 

As many of you know, I am the membership chair of Alamo Celiac, www.alamoceliac.org and chair of the San Antonio support group.  For many of the questions on your list, you can find the information at our website. 

 

 For instance, if you go to the website and click on Defensive Dining you will find suggestions for places to eat, along with in depth reviews for some of them.  There is also a category there called Fast Food, where you can go and click on whichever place you want to get the updated menu or information.

 

Another place to click will give you all the best books or cookbooks.

 

Another will give you Gluten Free Online Stores where you can click on all the manufactures websites.  It is so easy to go here and find what you want, rather than having to search for them seperately.   

 

We are presently working on the page called Local Resources and we need input from everyone about where they have found help other than the grocery stores, which is already listed at Local Gluten Free Shopping.  It might be someone who bakes gf, or a source other than a health food store.

 

There is Lists of various  gf lists, besides celiac.com's list.  We have free on-line lists and others that are for sale.

 

In fact, as a new celiac learner, I would suggest going down the row of buttons and click on each of them to see what can be found there.  Every time a new member calls to ask me a specific question, I first ask myself if this question can be answered at www.alamoceliac.org.  If not, the webmeister and I plan a way to put the information there.

 

Here in  San Antonio we have a new dietitian advisor that has spent a lot of time learning more about this diet from a professional dietitian perspective.  Her name is Sheri Zorrilla, and you can contact her at sszorrilla@satx.rr.com.  She might point you towards other helpful information too.  I just realized that her name is right along with yours on the cover of the Alamo Celiac newsletter, as Dietitan Advisor.

 

We hope that you will take advantage of the work we have done, so that you won't have to reinvent the celiac learning wheel.

 

Anne Barfield
San Antonio Celiac Support Group Chair
Alamo Celiac Membership Chair
www.alamoceliac.org
210 340-0648

-----Original Message-----
From: austin-tx-celiac-bounces@mylist.net [mailto:austin-tx-celiac-bounces@mylist.net]On Behalf Of Williams, Kristin
Sent: Wednesday, January 25, 2006 10:14 AM
To: Austin TX Celiacs
Subject: RE: [Austin-TX-Celiac] new member's questions

Dear Listserve,

 

I’m a pediatric dietitian new to the celiac world and have enjoyed reading your postings and learning from you. I’m trying to put together a starter kit for new patients.  I want to give patients and their families enough information for them to get started without overwhelming them….Tall order I know.  Here is what I have so far:

1. csaceliac.org and give materials order form for product listing
2. The GF diet, a comprehensive guide by Shelly Case
3. celiac.com.   I provide each family with the forbidden and safe foods list
4. Whole foods and the gluten free baked products / Central market
5. Restaurants GF menus (I have:  McDonalds, Wendys, Chiles, Galaxy café, Wild Wood Art Café(especially for bread and birthdays), PF Changs, KFC, Chic-fil-A
6. Mail order sources. I have a list that includes many businesses but I think it is likely out of date
7. Eating Gluten-free with Emily
8. Cookbook-Incredible Edible GF food for kids 
9. Alamo support group
10. glutenfreeoats.com 
11. I recommend specific products such as Pamela’s Pancake and baking mix(is this available in stores?) and Glutino  pretzels(I think only available by mail order?)
12. And of course, I give all families this listserve address.

 

 

 

I would greatly appreciate any feedback about what was helpful and what wasn’t.  If you think I should add anything please let me know.  

 

Things that patients as me for that I feel I don’t have a good resource for include:

1.                   A good bread recipe

2.                   more info on eating out.

3.                   recipe book

 

 

 

 

 

 

 

 

 

 

---

From: austin-tx-celiac-bounces@mylist.net [mailto:austin-tx-celiac-bounces@mylist.net] On Behalf Of Frances Kelley
Sent: Tuesday, January 17, 2006 12:20 PM
To: Austin TX Celiacs
Subject: RE: [Austin-TX-Celiac] new member's questions

 

What a great list!!  I hope we can get a lot of this information on our WEB sites. 
 
As many of you know we have a group WEB site www.alamoceliac.org.  On this site there is a section for “Defensive Dinning”, “Local Shopping” and “Local Resources”.  Defensive dining is all about places to eat here in Austin, San Antonio and Corpus Christi.  Local shopping lists stores that are right here in our local area and have selections of GF food.  Local Resources is really a catch all for everything else.  But again these are services that are not on-line or mail order but right here availably locally for us.
 
We are always looking for places to add to these lists.  The more people who can give us the information the more extensive and better those lists can serve all of us.  Submissions for the WEB site can be sent to me fkelley@austin.rr.com.
 
In addition we have a WEB site that is totally dedicated to dining.  It is www.popartsplace.com/Celiac.  The “C” in celiac must be capitalized.  In defensive dining the information is more formal.  Generally, these submissions talk about all of the GF selections available and are submitted after discussions with the manager or chef.  The poparts site is less formal.  This is a site that you can go to and submit information about a restaurant. You do not need to contact me or anyone else you can just log on to the site and enter the data.  You talk about what you ate and how your experience was.  There is no need to review the entire menu or to talk to the kitchen.  Each time you have a positive experience at a restaurant you can enter it in this site and I would encourage you to do so.
 
These WEB sites are the first places I direct newly diagnosed celiacs when they contact me.  They are also the places I send people who are visiting Austin for information about where to find GF food.  So, please submit any information you have or care to share with new celiacs, visiting celiacs or just new information for those of us in a GF rut.

Francie


At 11:21 AM 1/17/2006, you wrote:

Wow, it's amazing what we can accomplish as a group as apposed to just
one person.  I am sure that many of you have compiled a list of
information from these emails, but I thought I would share my rough and
crude way that I have done so for the new people. See my attachment and
if you have a better way of doing this please share.
P.S. I call my list GF Restaurants, but it includes Grocery Stores and
so on.


Melissa Ratliff
Wilshire Homes 
Receptionist
512-502-2050

-----Original Message-----
From: austin-tx-celiac-bounces@mylist.net
[ mailto:austin-tx-celiac-bounces@mylist.net] On Behalf Of
aallen23@austin.rr.com
Sent: Tuesday, January 17, 2006 11:03 AM
To: Austin TX Celiacs
Subject: Re: [Austin-TX-Celiac] new member's questions

So the Whole Foods downtown is going to order it and it should be in
Thursday am so I'll walk down there on Thursday and check and then send
an e-mail out to everyone.  Seems to have just been an issue with
when they moved from the old store to the new one.   I have a contact
now in the store if you want to filter requests through me I can pass
them onto her.

Anne

----- Original Message -----
From: LAURALAMANTIA@aol.com
Date: Tuesday, January 17, 2006 10:40 am
Subject: Re: [Austin-TX-Celiac] new member's questions

> Oh my gosh!  I've been looking all over town for the Tinkyada lasagna
> noodles too!  I knew they were available online but I'm not wild about

> buying groceries via mail order.  I shop at the Whole Foods downtown
> all the time and I guess I figured once they were all settled in and
> the dust had settled, maybe they would carry them?  I'd be willing to
> go in on a case if it was ordered ...
> does anyone have any idea of the shelf life of dried pasta?
>
> Laura :)
>
> From: "Pamela L. Gillies-Heaney" <gheaney@juno.com>
> > Date: Tuesday, January 17, 2006 10:14 am
> > Subject: Re: RE: [Austin-TX-Celiac] new member's questions
> >
> > >
> > > HI all, Yes, I've been looking for Lasagne noodles by Tinkyada
> also.
>